Recruiting to research: Not all research is for everyone but there is something for everyone
With the group, Jemma explored the obstacles to recruitment, highlighting that practical barriers such as visits to the clinic, travel, logistics, balancing clinical appointments with the demands of life, were all barriers. Additional concerns were medication (the fact that potential participants might be asked to take even more medication) and the way to [...]
PwP perspectives: Why research? Presenting the information? How best to engage PwP with research, including PPI?
The afternoon focused on involving people in research, starting with two talks reflecting the perspectives of two PwP (people with Parkinson's): Why research? Presenting information and How best to engage PwP with research. Vicki Dillon’s powerful speech started by explaining her involvement in research, and in particular in a clinical trial. She called for more support during and after trials and the need to mentor/buddy patients and their [...]
The Study Life Cycle: From research idea to successful study closure… and everything in between: case study UDCA
Professor Oliver Bandmann explored the Study Cycle – from research idea to successful study closure. Professor Bandmann has been working for the last 10 years to identify potential drugs that might target mitochondrial dysfunction in Parkinson’s. Given that animal models in Parkinson’s are imperfect, the team in Sheffield tested 2,000 drugs in genetically stratified patient tissue – tissue from people living with Parkinson’s (PwP) with [...]
The challenges of becoming a new PI?: case study
Dr Emily Henderson provided fascinating insight about the challenges of becoming a new PI by explaining her own journey. 'At the end of the talk I want to advertise to you that wherever you are, there is lots of opportunities to take part in research.' She very simply explained that the first step to becoming a PI was to contact the R&D department to discover what’s on the portfolio. If there is a project of interest, it is easy to complete [...]
Pragmatic research: making studies deliverable
Pauline Fitzell, Research Team Leader at Torbay Hospital, explained her experience of getting studies underway. The team in Torbay is set up to recruit into NIHR adopted studies in multiple disease areas, and it is only now they are setting up a portfolio of Parkinson’s studies with the Parkinson’s Disease Nurse Specialist as PI. Pauline explained in Torbay there were no trials and patients were missing out [...]
The Parkinson’s Academy 2018; building on success – recent, current and future collaborations
By Dr Peter Fletcher, Academic Director Welcome to the 2018 edition of Moving On, the in-house on-line newsletter of our Parkinson’s Academy. Uncertainly reigns as the year draws to an end. Since this time last year we have had a new secretary of State for Health, for the Geriatricians and Neurologists among you a new […]
Research Engagement – What is the Clinical Research Network; how can it assist you?
For a number of years we have received feedback at the Parkinson’s Academy about including sessions about Research. Taking these responses and working with The Cure Parkinson’s Trust (CPT) and NIHR leads Dr Camille Carroll and Professor Oliver Bandmann, and the Academy’s Dr Peter Fletcher, we designed the Research Engagement meeting for professionals who are […]
Now open for registration: Cutting Edge Science for Parkinson’s Clinicians 2019
In July 2018 the Parkinson’s Academy hosted a meeting, sponsored by Bial Pharma UK Ltd in Birmingham. ‘Cutting Edge Science for Parkinson’s Clinicians’ was designed to advance scientific insights for specialists working within Parkinson’s disease. Follow-up meeting: 25 & 26 June 2019 Macdonald Burlington Hotel, Birmingham, B2 4JQ We are currently planning a follow-up […]
Registrations open for the UK Parkinson’s Excellence Network 2019 Conference and Awards
Registrations are now open for the 2019 UK Parkinson’s Excellence Network Conference and Awards, 16 – 17 May 2019, Manchester. The meeting will bring together the Parkinson’s professional community to share, learn and shape the future of Parkinson’s services. The event includes the third Excellence Network Awards – recognising outstanding health and social care services […]
New Parkinson’s learning pathway for health and care staff
The Parkinson’s Academy is delighted to have supported the UK Parkinson’s Excellence Network in developing a comprehensive Health and Care Staff Learning Pathway which is now available on the Parkinson’s UK website: parkinsons.org.uk/learning The pathway is designed to enable staff working with people with Parkinson’s to easily find appropriate learning, development opportunities, and improve their understanding […]
