Please note that all session and slide content are the views of the Speakers, not the Parkinson’s Academy. The content of the recording is the speaker’s personal opinion at the time of recording. Due to the everchanging situation, advice given at the time of recording is subject to change.

Chair

Dr Annette Hand, Nurse Consultant/Associate Professor, Northumbria Healthcare NHS Foundation Trust

Speakers

Louise Ebenezer, Parkinson’s Disease Nurse Specialist, Cwm Taf Morgannwg University Health Board

Patsy Cotton, Advanced Nurse Practitioner Movement Disorders, NHS Greater Manchester Neurosciences Centre

Jane Price, Parkinson’s Disease Nurse Advanced Practitioner, Powys Teaching Health Board

Alison Leake, Parkinson’s Disease Nurse Specialist, St George’s University Hospitals NHS Foundation Trust

Resources

Telephone clinic information

By Jane Price

Telephone-Clinic-Information-Jane-Price-May-2020

Parkinson’s isolation checklist

By Jane Price

PARKINSONS-ISOLATION-CHECKLIST-Jane-Price-April-2020

Protocol for home visits

By Louise Ebenezer

Parkinsons-protocol-Covid-19-Louise-Ebenezer-May-2020

Presentation slides

Jane’s slides

Price-slides-PD-webinar02-COVID-May-2020

Patsy’s slides

Cotton-slides-PD-webinar02-COVID-May-2020

Alison’s slides

Leake-slides-PD-webinar02-COVID-May-2020

Louise’s slides

Ebenezer-slides-PD-webinar02-COVID-May-2020

Q&A

Now that we are all planning our exit strategy, how are you planning to re-book patients? What criteria are you using? Or are you going back to previous booking lists?

Jane Price

Speaking from a Wales perspective, we have heard nothing yet to suggest that the movement clinics can return to a face to face format in the near future. I think it would be fair to say that plans are being made for an easing of restrictions that enables those clinics that cannot operate remotely to restart while still maintaining the strictest safety measures needed. I anticipate that these will include expanding the eye clinics that have continued and for example the cancer and bowel clinics. It could well be that clinic slots will need to be extended to allow consultation room preparation and limit patients overlap time in the waiting area, and this will impact on the number that can be invited back.

Patients have continued to be booked into Movement disorder clinics and these will then revert to face to face as restrictions permit. The people that would have needed urgent review would have been receiving one by phone so they would be captured anyway.

I believe we also have to factor into this patient choice, and their fears as restrictions ease, in relation to when they will want to return. In addition to this there will also be transport issues (and all the anticipated restrictions expected with public transport) which will affect how they get to clinic.

Louise Ebenezer

Currently we are still only reviewing patients either by telephone calls or video link. They are being rebooked as if it a face to face clinic appointment.

There are plans in place for the ‘new normal’, however long term conditions have not yet been addressed. We have meetings in place to scope the future and new way of working in the coming weeks.

Patsy Cotton

Once we are given the go ahead to exit. I am currently listing PwP that I feel need to be seen as soon as possible. (Face to face)

All my clinics are booked for 5 months so I plan to phone and ask the preferred option telephone consultation/video link/or outpatient appointment. This will offer PwP choice and hopefully enhance self-management and take control.

Going forward this tele medicine will help patients and family members taking time off work to attend clinics and will allow me to consider evening clinics if required/requested. Re-book currently no change assessment at end of consultation in agreement with patient.

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This meeting is designed and delivered by the Parkinson’s Academy and sponsored by BIAL Pharma. The sponsor has had no input into the educational content or organisation of this meeting.

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PDNSA         

  

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