6th December 2018 saw the Parkinson’s Academy team up with The Cure Parkinson’s Trust for our first ever dedicated research engagement.
The highly-rated event covering a range of topics from the getting a project off the ground to the challenges faced, from engaging people with Parkinson’s to ensuring a project is deliverable.
Established and reputable researchers such as Dr Emily Henderson and Professor Oliver Bandmann told their stories and shared their insights, all of which – alongside that of their brilliant peers and co-presenters – has been distilled into a series of insightful films and short pinpoint articles. Additionally, all of the speakers can be heard again via our podcasts.
We know you have found the videos helpful with some of the films viewing levels already high. Retired nurse and Parkinson’s advocate Vicki Dillon’s film currently sits at 450 views and Parkinson’s advocate Dr Kevin McFarthing has received over 100 views in a month suggesting you are most interested in the patient perspective at present. Both presented at the event on ‘why research?’ with Vicki giving a patient’s perspective and Kevin sharing his resource, ‘the Hope List’ which analyses the clinical trial landscape to make it more accessible, dividing it into disease modifying trials and symptomatic studies.
We at the Academy are keen to continue providing you with relevant and interesting information on this subject, and would like to hear from you as to what information – and in what form – you would find most useful going forward. More videos? Hosted webinars? Resources on clinical trials? Do you prefer case studies and life stories, or quantitative evidence bases? Please tell us your views at firstname.lastname@example.org or complete the form available so we can continue to support your research journey.
Posted in: Research Engagement