Delivering quality services through the UK Parkinson's Excellence Network
by Suma Surendranath2016 has been an important year for the UK Parkinson’s Excellence Network with major activities taking place across the UK, all working to transform services for people affected by Parkinson’s.It started with a bang as the Excellence Network became a major sponsor of BritMODIS which saw neurologists, geriatricians and Parkinson’s nurses come together to discuss key issues and challenges in the management of movement disorders. The work of the Network in driving local service improvement was showcased by Excellence Network working group leads Andrea Lindahl, Biju Mohamed and Camille Carroll who all presented key activities within their regions.This year also saw the launch of the eagerly anticipated results of the 2015 UK Parkinson’s Audit. This presented the most complete picture to date of the state of Parkinson’s care in the UK with participation from 432 services and the collation of direct feedback from over 5,000 people with Parkinson’s and their carers. The Audit revealed examples of great care but also key priorities for change with the need for:
- Access to a full multidisciplinary team – only 13% of those who took part in the Audit offer a fully integrated service.
- Timely provision of patient information – only 65% of respondents felt they received enough information on diagnosis.
- Addressing issues with inpatient management – less than 50% of those admitted to hospital always got their Parkinson's medication at the right time.
- Consistent use of standardised assessments – around 40% of people were not assessed for blood pressure, pain and bone health in neurology services.
- Anticipatory care planning – only 28% of those with markers of advanced Parkinson's had any recorded discussion of end of life care issues.
- Better management of falls and infections
- Provision of quality education relevant to all professional groups (including the Foundation modules for health and social care staff which was recently recognised by the Royal College of Nursing)
- Service improvement grants to support local innovations
- Dissemination of resources including the managing mental health and avoiding unnecessary admissions interactive resources (developed directly by the Excellence Network community), the non-oral pathway and the OPTIMAL guideline and conversion calculator (the most accessed resource available from the Excellence Network resource directory)
- Keeping the whole Excellence Network community up-to-date with what’s happening in Parkinson’s through the monthly newsletter.
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